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1. internationale Wilkie-Treffen 2015
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auf der Farm in Kenia
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"steriler" Arbeitsplatz in Kenia
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Benedictus-Chor
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Rumänien 2016
Heuwagen
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Familienbesuch bei Kanze
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in der Schulküche
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Alltag mit dem Infusionsrucksack
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Spiel und Spaß
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Beitragsseiten

Seltene Kompressionssyndrome im Bauch kommen verständlicherweise sehr selten vor. Regelmäßige Treffen anzubieten ist nicht möglich. Dank der modernen Medien wie Internet und Telefon ist es dennoch möglich, Austausch zu pflegen und Beratungen durchzuführen. Ich erhalte Anfragen aus dem gesamten deutschen Sprachraum, sowie außereuropäischer Länder und pflege bis in die U.S.A. die Kontakte. 

Ansprechpartnerin seltene Kompressionssyndrome im Bauch:

Angela Mair, Österreich
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Tel: +43 699 11741375

Ansprechpartnerin Dunbar-Syndrom:

Steffi Möbus, Deutschland
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Adressen

SHG seltene Bauchgefäßerkrankungen
A-4643 Pettenbach, Gumberg 2

per Adresse: Initiative Leben OK
A-1040 Wien, Klagbaumgasse 3/G1