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1. internationale Wilkie-Treffen 2015
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Benedictus-Chor
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auf der Farm in Kenia
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Alltag mit dem Infusionsrucksack
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Familienbesuch bei Kanze
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Rumänien 2016
Heuwagen
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"steriler" Arbeitsplatz in Kenia
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Spiel und Spaß
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in der Schulküche

Ein Puzzle wird fertig

Viele Symptome - viele Diagnosen - viele Puzzleteile, die anscheinend nicht zusammen passen. Seit Jahren sind sich mein Hausarzt und ich einig, dass es eine Krankheit geben muss, die all diese Symptome und Diagnosen unter einen Hut bringen kann. 

Nun ist das Puzzle (hoffentlich) fertig. Den Rahmen bildet das Ehlers-Danlos-Syndrom vom hypermobilen Typ (hEDS). Dieses verursachte die Kompressionssyndrome im Bauch (ARPCS). Diese wiederum führten zu Komplikationen und Folgeerkrankungen. Meine unterschiedlichen Beschwerden im Bewegungsapparat durch die Überbeweglichkeit mancher Gelenke seit meiner Kindheit finden nun auch einen Platz. hEDS ist sehr oft mit dem Mastzellaktivierungssyndrom (MCAS) vergesellschaftet, was auch bei mir so ist. Und man hat einen Zusammenhang zwischen MCAS mit vasospastischer Angina pectoris (Prinzmetalangina) beobachtet, die auch mein Leben immer wieder sehr beeinträchtigt. Und dass das hEDS Grund meiner Gefäßprobleme ist, wird mir immer wieder von Ärzten gesagt. Somit wäre das Puzzle fertig. 

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