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auf der Farm in Kenia
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Benedictus-Chor
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Spiel und Spaß
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1. internationale Wilkie-Treffen 2015
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Familienbesuch bei Kanze
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"steriler" Arbeitsplatz in Kenia
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Alltag mit dem Infusionsrucksack
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in der Schulküche
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Rumänien 2016
Heuwagen

Erstes inoffizielles internationales Wilkie-Treffen

Es waren bewegende Momente für mich, andere Wilkiepatienten zu treffen. Wir saßen viele Stunden zusammen und tauschten aus. International, da Deutschland, Österreich und Italien vertreten war. Zuvor war ich beim Spezialisten. Mein Abstand zwischen den Arterien hat sich auf 5 mm reduziert. Da der Darm noch immer zwischen den Arterien liegt, wird er eingeklemmt. Ein Mädchen hat auch ein Rezidiv aus diesem Grund. Es gäbe zwei Operationsmethoden bei mir. Aber bevor er operiert, möchte der Gefäßspezialist die Meinung eines Spezialisten in Leipzig hören, der sich auf die Diagnose von Gefäßkompressionsyndromen spezialisiert hat. Morgen fahre ich also etwa 5 Stunden nach Leipzig. Da ich nicht mehr so viel Ernährung mit habe, habe ich mir in einem Krankenhaus Infusionen besorgt. Ich schaffe auch diese nächste Herausforderung.

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